Amina

I was born on the 5th of december 1984, i was in hospital for a couple of months and i was dignoised with having moebius syndrome, i also had to have the tube going through my nose to my stomach so my mum could feed me, my 6th and 7th crainial nerve were missing, i also have a speech problem due to my high palate, i had the smile surgery done when i was eleven and i had operations before that aswell, i think you have good days and bad days with having this syndrome, because the syndrome is so rare aswell not many people or doctors know what it is, so if a website makes people more aware of what the syndrome is then that can only be a good thing.

Author: Tim Smith

Close Menu
×
×

Cart