Let me introduce myself …
My name is Rafa. I was born on March 6, 2009 in San Javier, Murcia. I have Moebius Syndrome.
This syndrome makes it difficult to smile, make faces, lips together … But I’m not incapable of being happy, angry, or surprised mourn. If you learn to look at me know my mood.
On many occasions the Moebius syndrome is accompanied by other diseases. In my case I was born with club feet, retrognathia and a priori it seems more important, I was born without hands.
I have overcome severe sepsis infection that had to be sedated for a week and needs to breathe for a year. I bring tracheostomy and gastric tube. I use my splints to correct club feet and prosthetic hand.
I have problems pronouncing properly, and keep scars of wars won. I have a long way to go and many trials to overcome. I just need time and trust.
As you can understand, not me writing this. He is my father who is allowed to license it for me.
And it is he who says that I have the most beautiful eyes in the world.
To find out more information about Rafa visit www.yosemoebius.org or www.rafapuede.es