- We knew Baby Tre was going to be a special baby since before he was born. He was diagnosed with Hydrocephalus when I was just 26 weeks pregnant, at that moment we were told he would not survive the pregnancy. He was born August 24, 2011 at 9:50 AM with a malformation to the right hand and then they gave him a 2% chance of survival. His diagnosis soon followed Epilepsy, Scoliosis, West Syndrome (type of seizures) and Morning Glory Syndrome (no optic nerves). As time progressed I impatiently waited for Tre to smile. I became very involved with the Hydrocephalus community. March 5, 2012 I uploaded a picture of Tre like I frequently did to show off his acknowledgements, he was holding something, he rarely did. Well I had recently friend-ed a Hydro Mom on my Fb. She sees this picture and says “can he smile? Just asking cause he looks a lot like my friends little boy” I thought to myself, how could she possibly have known that? I just added her, she then continues on saying ” Did he have genetic testing? Look up Moebius Syndrome” That is the first time I heard those words “Moebius Syndrome”. Sure enough I looked it up and it was simply a Tre Checklist. Everything I read was My Tre. I couldn’t believe it. March 23, 2012 I took Tre to Genetics, which they were still testing him for all kinds of stuff. I mentioned it to the Doctor and she had NEVER heard of it. She did her research and sure enough was then diagnosed. The day before he turned 7 months old. It was bittersweet getting the diagnosis. Sweet that it all began to make sense, it all added up, I knew that I didnt have to wait anymore, Bitter knowning that I would never see him smile. Tre went on to fight for each breath until he was 14 months when he just couldnt anymore. He passed away at home in my arms. Since then I have doing everything to teach people about Moebius, even though Tre is not here. I know there is a mom out there who is waiting for a smile like i was and i want to find her, who ever she may be. I know she is looking for answers and I want to reach her!! I have also recently started a Project in his name “Tüts for Tre” . Me, my sister and a Moebius Grandma send FREE Tutus and bows all around the world giving SMILES to little girls with disabilities all around the world. Baby Tre may not be here physically but Mom wont stop teaching the world all about SMILES and all the other side effect Moebius Syndrome has, I even became a Many Faces of Moebius Syndrome Ambassador.
To learn more about Tre follow this link. www.manyfacesofmoebiussyndrome.com/tre!
Leroy Arizmendi III better known as Baby Tre was born with Hydrocephalus on August 24, 2011. And this is how his journey begins. It was July 15, 2011 when we were given the crucial news that he had masses of water surrounding his brain and his head was expanding at an abnormal rate. It was a short time later when we learned the medical term; Hydrocephalus. An amniotic exam was performed to assess his chromosomes for any other form of disabilities, to no avail. He was due on September 24, 2011 yet we were told he had a very very low percentage rate of surviving to full-term. BUT on August 24, he was delivered via emergency C-section. He was born weighing 3lbs 14oz and with a malformation to his right hand. Within the first three months of his life, he had four surgeries. First was a shunt insertion, then two shunt revisions and lastly a “G-tube” insertion. As the months passed and many doctor visits later; he was diagnosed with Moebius Syndrome, West Syndrome, Congenital Scoliosis, Morning Glory and Epilepsy. He endured many many hospital stays, but our Baby Tre, aka Treski, kept holding on and fought against all odds until the day of November 13, 2012, at 14 months, his tiny frail body could no longer hold on and he passed away. His journey was long and trying even though it was in a short time; however he did get the opportunity to celebrate his first birthday. And that is just a shortened version of Baby Tre’s stretched life but he was loved every minute of it and we cherished every second of it. And are honored to share his story, hoping his life will be an inspiration to you to NEVER give up hope.
At 11:50 Am on Tuesday November 13 2012 Tre passed from this earth and went to be with God. Our Prayers and thoughts are with Tre’s family in this time of great sorrow. To more information go to www.facebook.com/babytreski