Moebius Syndrome Awareness Day is an annual event created by the Many Faces of Moebius Syndrome (MFOMS) and celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888. Click here to learn more.
WHAT IS MOEBIUS SYNDROME?
Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability tomove the eyes from side to side. Most people with Moebius syndrome are born with facial paralysis, which means they cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome. Most people with Moebius syndrome have normal intelligence, and others should take care not to confuse their lack of facial expression with dullness or unfriendliness. It is named for Paul Jullius Mobius, a neurologist who first described the syndrome in 1888. [Read More]
OUR MISSION
To create a better tomorrow for our children and our global Moebius Syndrome community through education, awareness and support.