Birthplace of the Global Moebius Syndrome Online Community

Kevin is 12 years old and he loves YouTube!! He loves to watch videos full of emotions. He likes surprise military families, he likes to watch wedding speeches and anything that involves emotions or a party.
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Zayden’s life started on 8/9/10. From the moment he was born, we knew he was special. He was an absolute surprise and survived the miscarriage of his twin at 10 weeks. We knew this little guy was meant to be here for a reason.
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Dakotah was born on October 15 2008 via an emergency C-Section. I was my daughters birthing coach. On October 15th we checked in for what was to be a normal delivery. After 15 hours in labor and Dakotah’s heart rate dropping several times over the course of the day it was decided that a C-Section was necessary.
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On June 2nd, 2011 my husband James and I went into the hospital around 5 am. I was beyond ready to give birth and to see our sweet boy who had been very active the couple months before.
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Moebius Syndrome was something I knew very little about until the age of the Internet. Being able to connect with people from all over the U.S. and throughout the world has been tremendously enlightening. There was a time, however, that I felt alone…
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I am a 6th year chemistry PhD student at Brown University. I am set to defend my thesis this upcoming April and graduate in May. I was born with Moebius Syndrome with defects to my abducens nerve limiting the peripheral movement of my eyes. I was also born with partial hands and no feet.
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Ivy Stewart, she is 2 years old and from New Brunswick, Canada. She was born with bilateral clubfoot and had 19 weeks in castings followed by her braces.
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Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability tomove the eyes from side to side. Most people with Moebius syndrome are born with facial paralysis, which means they cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome. Most people with Moebius syndrome have normal intelligence, and others should take care not to confuse their lack of facial expression with dullness or unfriendliness. It is named for Paul Jullius Mobius, a neurologist who first described the syndrome in 1888.  [Read More]


To educate and create awareness about Moebius Syndrome in order to enable those affected by it to live better lives.