Our Moebius Syndrome Holiday Hero
January 24, 2024
Jocelyn “Joey” Everly turns ten on MSAD 2024! Joey is a small bright girl who has an additional difficulty of being deaf. She is a first grader who loves art and movies. Happy Birthday, Joey!
Supporting our Community with Love, Empathy, and Strength
Our mission is to improve the lives of individuals and families affected by Moebius Syndrome by increasing awareness, advocating for their medical needs, and providing resources and support. Through education, outreach, and collaboration, we aim to raise public understanding of this rare neurological disorder and promote inclusion and acceptance of those living with it. We also strive to empower and train future leaders in the Moebius Syndrome community by providing leadership development opportunities, mentorship, and networking. Our ultimate goal is to foster a community of compassion, strength, and resilience that empowers individuals with Moebius Syndrome to achieve their full potential and thrive in all aspects of life. We believe that everyone deserves the chance to live their best life, and we are committed to making that a reality for individuals and families affected by Moebius Syndrome by fostering a robust and supportive community.