Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Moebius syndrome are born with facial paralysis, which means they cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome. Most people with Moebius syndrome have normal intelligence, and others should take care not to confuse their lack of facial expression with dullness or unfriendliness. It is named for Paul Jullius Mobius, a neurologist who first described the syndrome in 1888.
Our mission is to improve the lives of individuals and families affected by Moebius Syndrome by increasing awareness, advocating for their medical needs, and providing resources and support. Through education, outreach, and collaboration, we aim to raise public understanding of this rare neurological disorder and promote inclusion and acceptance of those living with it. We also strive to empower and train future leaders in the Moebius Syndrome community by providing leadership development opportunities, mentorship, and networking. Our ultimate goal is to foster a community of compassion, strength, and resilience that empowers individuals with Moebius Syndrome to achieve their full potential and thrive in all aspects of life. We believe that everyone deserves the chance to live their best life, and we are committed to making that a reality for individuals and families affected by Moebius Syndrome by fostering a robust and supportive community.

Our Stories

Many Faces of Moebius Syndrome Testimonials: