Moebius Syndrome – Founded in 2009, The Many Faces of Moebius Syndrome is the largest all volunteer Moebius Syndrome organization in the world. Prior to the popularity of Social Media, our founder Tim Smith, Gavin Fouche, Donnie Downs, and a few others pioneered the internet and brought the online global Moebius Syndrome community together one family at a time. We still maintain the largest Facebook page and group pages in the community.

In 2009 we started collecting personal stories from the global Moebius Syndrome community and now house the worlds largest selection.

On January 24, 2011, Many Faces of Moebius Syndrome founded Moebius Syndrome Awareness Day which has grown to become a global day of celebration held on January 24th of each year. History of Moebius Syndrome Awareness Day.

Our mission is to improve the lives of individuals and families affected by Moebius Syndrome by increasing awareness, advocating for their medical needs, and providing resources and support. Through education, outreach, and collaboration, we aim to raise public understanding of this rare neurological disorder and promote inclusion and acceptance of those living with it. We also strive to empower and train future leaders in the Moebius Syndrome community by providing leadership development opportunities, mentorship, and networking. Our ultimate goal is to foster a community of compassion, strength, and resilience that empowers individuals with Moebius Syndrome to achieve their full potential and thrive in all aspects of life. We believe that everyone deserves the chance to live their best life, and we are committed to making that a reality for individuals and families affected by Moebius Syndrome by fostering a robust and supportive community. 

History of the Many Faces of Moebius Syndrome.

We hope you’ll explore our websites and learn all about our amazing global community. Please feel free to email us at with any questions or suggestions.

If you would like to meet one of the Many Faces of Moebius Syndrome go look in the mirror. Now that you have learned a little about us you are one of us. Welcome to our family and our community