November 1, 2019 / Asena Jalalzada our Moebius Syndrome Holiday Hero

Ladies and Gentlemen Team Moebius is proud to announce that Miss Asena Jalalzada from Beaverton, Oregon is our Moebius Syndrome Holiday Hero for Friday November 1st, 2019.

Asena has been showing us how to be strong and fight against lives difficulties. Her oxygen percentage dropped to 5%-20% a couple of times, but she fought back. Although she has track for breathing and g-tube for feeding everything is going pretty good.

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Halloween Costume Contest

The Many Faces of Moebius Syndrome is hosting a Halloween Costume Contest for our global Moebius Syndrome Community. The three winners of the contest will receive a free Moebius Syndrome…

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10/18/19 – Welcome

Welcome to MFOMS Blog Over the last couple of months, Team Moebius has been regularly posting regular updates to our Social Media platforms.   As we continue to streamline and improve…

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Alabama

Children's of Alabama 1600 7th Ave S Birmingham AL 35233 Craniofacial Center Phone:  205-638-9653 Mention Moebius: NO

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Logan Reed

Happy Holidays to All! I am Logan, I am 13 years old and live in New Hampshire. I am currently in the 8th grade. This past fall I participated in…

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Friends and Family of MFOMS

July 19, 2019 Friends and supporters of Many Faces of Moebius Syndrome:   For the last 10 years, Many Faces of Moebius Syndrome (MFOMS) has been a small unofficial group ran…

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Washington

Closest children's hospital w/Moebius Specialist: Seattle Children's Hospital4800 Sand Point Way NESeattle, WA 98105206-987-2000Cranialfacial Center: 206-987-0184CRAOutofRegion@Seattlechildrens.org https://www.seattlechildrens.org/clinics/craniofacial/conditions-treated/ Additional clinic locations with Craniofacial Units include Everett, Richland Providers that have knowledge…

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Miracle May

Moebius Syndrome: Miracle May My name is Miracle May i am 22years of age born in 19 January 1997. I was diagnosed with the condition when i was 3years old.…

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