Stories from the Global Moebius Syndrome Community.

Owen

With the kids at grandmas and a big day ahead of us we headed down to San Diego for the night. Getting up early really isnt our thing so we…

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Ozzie

Nothing about the way Ozzie was born was how i planned it. With our older son Cedric being born 8 weeks early, i had every intention of having a calm…

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Pheobe

Phoebe is 13 years old, she was born on September 7th 1998 weighing 9b 9oz, it had been a normal pregnancy with no problems detected at any of the scans,…

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Preston Tassi

Preston lives in Des Moines, Iowa and will be 7-years old in May 2019. He will begin 1st grade in the 2019-2020 school year. He has made lots of good little friends at his school and loves going to school. He tells everyone his favorite subjects are Gym, Lunch, and Recess. But he has done well in math and spelling. (His momma is very proud of him)! 000000000006

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Rafa

Let me introduce myself ... My name is Rafa. I was born on March 6, 2009 in San Javier, Murcia. I have Moebius Syndrome.This syndrome makes it difficult to smile,…

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Rak

It was an early Spring morning when life began to change, my mom was rushed to the hospital and was in labor . As my mom entered the emergency room,…

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Riley

My name is Abigail Ryan and i am 16 years old from Hampshire, England. I have an eight month old son called Riley James who was born on 29th June 2010 and has recently been diagnosed with moebius syndrome.

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Roland

I was born on March 7, 1951 in Bethesda, Maryland at the National Naval Medical Center.   At that time, my dad was serving at the Pentagon as an officer in the U. S. Navy.  Our family resided in Falls Church, Virginia (a D. C. suburb) on and off for nine years while Pop served in different capacities at the Pentagon.

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Roxana

Sonriendo con el corazón Dra. Roxana Lizbeth Canchola Gonzalez No es lo que parece…no están enojados…tampoco son apáticos…tampoco antisociales…mucho menos retrasados mentales…Son personas que no pueden sonreír… Mi nombre es…

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Russell

Moebius syndrome is an extremely rare disorder present at birth where the 6th and 7th cranial nerves have not developed properly. People with moebius are unable to form facial expressions…

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