Stories from the Global Moebius Syndrome Community.

Mickey

At my 20 week they told me that i was having a boy and that there was something wrong with his feet. So we went to manchester for a more…

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Miracle May

Moebius Syndrome: Miracle May My name is Miracle May i am 22years of age born in 19 January 1997. I was diagnosed with the condition when i was 3years old.…

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Molly

Molly was born on September 6, 2011 and made our little family complete.  She was a very easy going, happy baby with no health issues that we knew of.  At…

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Morgan

I wanted to share the story of my daughter Morgan. She is 9 years old, the last of my four children. She was born and lives in Lancaster, Pennsylvania. I…

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Naite

Moebius Syndrome Naite Moebius Syndrome - Naite was born with Congenital heart disease TOF which was found during an ultrasound.He spent the first 6 weeks of his life in the…

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Nath

I'm Nath 32 from south west of England. I was born in bridgwater in my local hospital Mary Stanley. From the start my mum and family realized that i had…

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Noah

Noah est né le 23 juin 2006 avec 4kg020gr et 51,5cm à Verviers en Belgique. La grossesse s'est déroulée sans aucun problème, l'accouchement également.Le premier problème se présente a peine…

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Olivia

LONGVIEW, TX (KLTV) - Recently, the Artsview Children's Theater in Longview held its Annual Kick-Off Dinner. The group told us about one of the children who moved the audience to…

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Ophelia Senters

Moebius Syndrome - Ophelia was born full term, but ultimately spent a month in the NICU. She was immediately diagnosed with CVI (cortical visual impairment), bilateral club feet, and had…

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Owen

With the kids at grandmas and a big day ahead of us we headed down to San Diego for the night. Getting up early really isnt our thing so we…

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