Stories from the Global Moebius Syndrome Community.

Theresa

My name is Theresa McMillan, and I was born with a very rare birth defect called Moebius Syndrome. It affects mainly my face. I'm missing some nerves in my face…

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Thomas

When I was pregnant with Thomas and his twin sister, I had a major bleed at about six weeks of gestation. Both my doctor and I thought that I had…

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Thomas Cooper

Thomas Cooper-Abbs was born 21 September 2000 and weighed 2 lb 10 oz, he was just under 11 weeks premature. Although a frightening time, both myself and his mother were…

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Tim

I was born on May 20th 1963 in Alexandria, Virginia. In those years  if a child was born with a deformity, impairment, or disabilty they were automatically labeled as being…

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Tim / Open letter 2016

Hi! I’m Tim Smith President of the Many Faces of Moebius Syndrome. Each year I write something new about our community and the changes that are taking place in it. This year I want to do things a little different and talk about our community and it’s future. 

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Tony Manning

September 18, 2007, a day that started a new chapter in our lives. At 3:06pm in Labor and Delivery of University Hospital in Augusta, Georgia William Joseph Anthony Victor Manning II (AKA Tony) came into our lives. From everything that we had heard about the ultrasounds it was going to be a perfect delivery just a week early due to induction and we would have nothing but a healthy baby boy. Well it didn’t exactly work that way. (more…)

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Tre

We knew Baby Tre was going to be a special baby since before he was born. He was diagnosed with Hydrocephalus when I was just 26 weeks pregnant, at that…

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Tyler

I had an uneventful pregnancy up until 29 weeks. I was then diagnosed with polyhydramnios (that is too much amniotic fluid) An ultrasound done at the stage raised further questions as to the health of the baby. The chest and abdomen measurements were too small, one exam questioned if there was a bladder another suggested difficulty finding the stomach! I left work at noon to be hospitalized that same day and then flown by helicopter to the nearest Women’s and Children’s Hospital.

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Vicki

In 1990 I was blessed with the birth of my baby boy – something I had waited for all my life.  There was only one catch – he couldn’t suck.  At the time of his birth, a pediatric neurologist told me that he had something called Moebius syndrome, and that meant he would never smile. I accepted that, forgot the name of the syndrome, and took my little boy home.

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