Stories from the Global Moebius Syndrome Community.

Russell

Moebius syndrome is an extremely rare disorder present at birth where the 6th and 7th cranial nerves have not developed properly. People with moebius are unable to form facial expressions…

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Ryan

On June 2nd, 2011 my husband James and I went into the hospital around 5 am. I was beyond ready to give birth and to see our sweet boy who…

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Sandy

Across the Miles "in my day..." is the kind of phrase that didn't make much sense to me as a kid because I had no conceptualization of experiences beyond my…

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Sebastian

Hola me llamo Sebastian, nací en Maracay-Venezuela el 21 de marzo de 2007, tengo 3 anos y 10 meses, nací a las 39 semanas y todo estuvo bien, los doctores…

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Shelly

In October 15, 1992 two peculiar babies were delivered by an optional Cesarean Section. The first newborn to be removed from the womb was a boy weighing in at 8lbs.…

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Sky Lynn

Sky Lynn I had never heard of Mobieus Syndrome until last year. Since then, I have learned so much and am grateful for the opportunity to share my daughter's evolving…

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Soph

When I was born, apparently I looked as though I had suffered a kind of stroke. My eyes were crossed and the left side of my mouth was droopy. The…

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Sophie

My name is Charlotte Louise Whiley and i have 2 little girls my oldest daughter Sophie was born was Born with Moebius Sydrome. My pregnancy with Sophie was normal apart…

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Susana

Susana Parella Romero is the daughter of Catalan parents who went with their family to France during the Spanish Civil War. They stayed in France throughout World War Two and…

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Tate

Tate Timothy JacobsonOctober 18 2011 - April 11 2013 At our 20 week ultrasound we found out that our baby boy was missing his left hand. This sent many of…

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