Stories from the Global Moebius Syndrome Community.

Tate

Tate Timothy JacobsonOctober 18 2011 - April 11 2013 At our 20 week ultrasound we found out that our baby boy was missing his left hand. This sent many of…

Continue Reading Tate

Teri

August 11, 1965, I was born to a young mother and father who had no idea what Moebius syndrome and Polands syndrome was.  Neither did the Doctors or nurses in…

Continue Reading Teri

Moebius Syndrome: Theresa

Moebius Syndrome TheresaMy name is Theresa McMillan, and I was born with a very rare birth defect called Moebius Syndrome. It affects mainly my face. I'm missing some nerves in…

Continue Reading Moebius Syndrome: Theresa

Moebius Syndrome: Thomas

Moebius Syndrome: ThomasWhen I was pregnant with Thomas and his twin sister, I had a major bleed at about six weeks of gestation. Both my doctor and I thought that…

Continue Reading Moebius Syndrome: Thomas

Thomas Cooper

Moebius Syndrome: Thomas Cooper-Abbs Moebius Syndrome: Thomas Cooper-Abbs was born 21 September 2000 and weighed 2 lb 10 oz, he was just under 11 weeks premature. Although a frightening time,…

Continue Reading Thomas Cooper

Tim Smith: Moebius Syndrome

Tim Smith Moebius SyndromeI was born on May 20th 1963 in Alexandria, Virginia. In those years  if a child was born with a deformity, impairment, or disabilty they were automatically…

Continue Reading Tim Smith: Moebius Syndrome

Tim / Open letter 2016

Hi! I’m Tim Smith President of the Many Faces of Moebius Syndrome. Each year I write something new about our community and the changes that are taking place in it. This year I want to do things a little different and talk about our community and it’s future. 

(more…)

Continue Reading Tim / Open letter 2016

Moebius Syndrome: Tony Manning

Moebius Syndrome Tony September 18, 2007, a day that started a new chapter in our lives. At 3:06pm in Labor and Delivery of University Hospital in Augusta, Georgia William Joseph…

Continue Reading Moebius Syndrome: Tony Manning

Tre

We knew Baby Tre was going to be a special baby since before he was born. He was diagnosed with Hydrocephalus when I was just 26 weeks pregnant, at that…

Continue Reading Tre