Stories from the Global Moebius Syndrome Community.

Ron Pimental

Moebius Syndrome: Ron Pimental Moebius Syndrome - My name is Ron Pimental I’m a 45yr old living with my unwanted roommate, Mobius Through escapism in professional wrestling and bodybuilding, I…

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Roxana

Sonriendo con el corazón Dra. Roxana Lizbeth Canchola Gonzalez No es lo que parece…no están enojados…tampoco son apáticos…tampoco antisociales…mucho menos retrasados mentales…Son personas que no pueden sonreír… Mi nombre es…

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Russell

Moebius syndrome is an extremely rare disorder present at birth where the 6th and 7th cranial nerves have not developed properly. People with moebius are unable to form facial expressions…

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Ryan

On June 2nd, 2011 my husband James and I went into the hospital around 5 am. I was beyond ready to give birth and to see our sweet boy who…

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Sandie

My name is Sandie, I'm 35 and I live in upstate NY. I was born in 1985 and doctors told my parents I would basically be a vegetable forever. Luckily…

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Sandy

Across the Miles "in my day..." is the kind of phrase that didn't make much sense to me as a kid because I had no conceptualization of experiences beyond my…

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Sebastian

Hola me llamo Sebastian, nací en Maracay-Venezuela el 21 de marzo de 2007, tengo 3 anos y 10 meses, nací a las 39 semanas y todo estuvo bien, los doctores…

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Shelly

In October 15, 1992 two peculiar babies were delivered by an optional Cesarean Section. The first newborn to be removed from the womb was a boy weighing in at 8lbs.…

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Sky Lynn

Sky Lynn I had never heard of Mobieus Syndrome until last year. Since then, I have learned so much and am grateful for the opportunity to share my daughter's evolving…

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Soph

When I was born, apparently I looked as though I had suffered a kind of stroke. My eyes were crossed and the left side of my mouth was droopy. The…

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