Stories from the Global Moebius Syndrome Community.


My name is Charlotte Louise Whiley and i have 2 little girls my oldest daughter Sophie was born was Born with Moebius Sydrome. My pregnancy with Sophie was normal apart…

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Susana Parella Romero is the daughter of Catalan parents who went with their family to France during the Spanish Civil War. They stayed in France throughout World War Two and…

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Tate Timothy JacobsonOctober 18 2011 - April 11 2013 At our 20 week ultrasound we found out that our baby boy was missing his left hand. This sent many of…

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August 11, 1965, I was born to a young mother and father who had no idea what Moebius syndrome and Polands syndrome was.  Neither did the Doctors or nurses in…

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Moebius Syndrome: Theresa

Moebius Syndrome TheresaMy name is Theresa McMillan, and I was born with a very rare birth defect called Moebius Syndrome. It affects mainly my face. I'm missing some nerves in…

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Moebius Syndrome: Thomas

Moebius Syndrome: ThomasWhen I was pregnant with Thomas and his twin sister, I had a major bleed at about six weeks of gestation. Both my doctor and I thought that…

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Thomas Cooper

Moebius Syndrome: Thomas Cooper-Abbs Moebius Syndrome: Thomas Cooper-Abbs was born 21 September 2000 and weighed 2 lb 10 oz, he was just under 11 weeks premature. Although a frightening time,…

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Tim Smith: Moebius Syndrome

Tim Smith Moebius SyndromeI was born on May 20th 1963 in Alexandria, Virginia. In those years  if a child was born with a deformity, impairment, or disabilty they were automatically…

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Tim / Open letter 2016

Hi! I’m Tim Smith President of the Many Faces of Moebius Syndrome. Each year I write something new about our community and the changes that are taking place in it. This year I want to do things a little different and talk about our community and it’s future. 


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