Stories from the Global Moebius Syndrome Community.

Sophie

My name is Charlotte Louise Whiley and i have 2 little girls my oldest daughter Sophie was born was Born with Moebius Sydrome. My pregnancy with Sophie was normal apart…

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Susana

Susana Parella Romero is the daughter of Catalan parents who went with their family to France during the Spanish Civil War. They stayed in France throughout World War Two and…

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Tate

Tate Timothy JacobsonOctober 18 2011 - April 11 2013 At our 20 week ultrasound we found out that our baby boy was missing his left hand. This sent many of…

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Teri

August 11, 1965, I was born to a young mother and father who had no idea what Moebius syndrome and Polands syndrome was.  Neither did the Doctors or nurses in…

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Moebius Syndrome: Theresa

Moebius Syndrome TheresaMy name is Theresa McMillan, and I was born with a very rare birth defect called Moebius Syndrome. It affects mainly my face. I'm missing some nerves in…

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Moebius Syndrome: Thomas

Moebius Syndrome: ThomasWhen I was pregnant with Thomas and his twin sister, I had a major bleed at about six weeks of gestation. Both my doctor and I thought that…

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Thomas Cooper

Moebius Syndrome: Thomas Cooper-Abbs Moebius Syndrome: Thomas Cooper-Abbs was born 21 September 2000 and weighed 2 lb 10 oz, he was just under 11 weeks premature. Although a frightening time,…

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Tim Smith: Moebius Syndrome

Tim Smith Moebius SyndromeI was born on May 20th 1963 in Alexandria, Virginia. In those years  if a child was born with a deformity, impairment, or disabilty they were automatically…

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Tim / Open letter 2016

Hi! I’m Tim Smith President of the Many Faces of Moebius Syndrome. Each year I write something new about our community and the changes that are taking place in it. This year I want to do things a little different and talk about our community and it’s future. 

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