Stories from the Global Moebius Syndrome Community.

Sophie

My name is Charlotte Louise Whiley and i have 2 little girls my oldest daughter Sophie was born was Born with Moebius Sydrome. My pregnancy with Sophie was normal apart…

Continue ReadingSophie

Susana

Susana Parella Romero is the daughter of Catalan parents who went with their family to France during the Spanish Civil War. They stayed in France throughout World War Two and…

Continue ReadingSusana

Tate

Tate Timothy JacobsonOctober 18 2011 - April 11 2013 At our 20 week ultrasound we found out that our baby boy was missing his left hand. This sent many of…

Continue ReadingTate

Teri

August 11, 1965, I was born to a young mother and father who had no idea what Moebius syndrome and Polands syndrome was.  Neither did the Doctors or nurses in…

Continue ReadingTeri

Thomas Cooper

Moebius Syndrome: Thomas Cooper-Abbs Moebius Syndrome: Thomas Cooper-Abbs was born 21 September 2000 and weighed 2 lb 10 oz, he was just under 11 weeks premature. Although a frightening time,…

Continue ReadingThomas Cooper