Stories from the Global Moebius Syndrome Community.

Amina

I was born on the 5th of december 1984, i was in hospital for a couple of months and i was dignoised with having moebius syndrome, i also had to…

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Amy Schuster

Moebius Syndrome: Amy Schuster My name is Amy Schuster. I was born on January 5th, 1993 in Hilton Head, South Carolina. I moved to Colorado when I was 2 and…

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Andrea Smith

Moebius Syndrome: Andrea Smith Moebius Syndrome - I am Andrea Smith and I am excited to be in the role of Executive Director for Many Faces of Moebius Syndrome. I…

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Anika

Moebius Syndrome - Anika Updated 12/21/2015 Moebius Syndrome - Anika is 14 years old and was born on Easter. She is most happy at home on the couch next to…

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Anita Fuentes

Moebius Syndrome - Anita Fuentes Moebius Syndrome - Hi, I’m Anita and I’m from Brisbane, Australia. I have a mild case of Moebius Syndrome. Put simply, my main symptoms are…

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Ashley & Zach

Moebius Syndrome - Zach Moebius Syndrome - My name is Ashley. When I was 21 yrs old I got pregnant with my son Zachary. My husband and I hadn't been…

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Austin Halls

Hi my name is Austin Halls and I live in New Jersey. I am 14 years old. I have Moebius Syndrome. My life never has a dull moment. When I…

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Ben

My 2nd pregnancy was uneventful, boring & long and when Ben finally put in an appearance 7 days late on 25th June 2005 everything seemed perfectly normal. A passing doctor remarked that he “looked a bit squished” and at the time I remember thinking that anyone would look a bit squished if they had just made the same journey!!

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Benjamin

My son Benjamin, born Sept. 30th 2006, was diagnosed with Moebius at around two weeks of age. It has been a long road but so worth it. Benjamin is such a joy and blessing to our lives. He has also been diagnosed with another syndrome call VACTERL.

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Ben Myers

In 2011, an Egyptian man by the name of Gamal Ibrahim named his firstborn daughter Facebook, after the famous social networking site. Surprisingly, this was not the result of an obsession with the web. Rather, it was an act of gratitude – Gamal wanted to honor the website for facilitating the protests of January 25, 2011 which ousted President Hosni Mubarak.

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