Amelea
Moebius Syndrome - Amelea Moebius Syndrome - Amelea is 7, she was diagnosed with Moebius at 14 months old...she was born with crossed eyes, very minimal facial movement, and couldn't…
Stories from the Global Moebius Syndrome Community.
Amina
I was born on the 5th of december 1984, i was in hospital for a couple of months and i was dignoised with having moebius syndrome, i also had to…
Amy Schuster
Moebius Syndrome: Amy Schuster My name is Amy Schuster. I was born on January 5th, 1993 in Hilton Head, South Carolina. I moved to Colorado when I was 2 and…
Andrea Smith
Moebius Syndrome: Andrea Smith Moebius Syndrome - I am Andrea Smith and I am excited to be in the role of Executive Director for Many Faces of Moebius Syndrome. I…
Anika
Moebius Syndrome - Anika Updated 12/21/2015 Moebius Syndrome - Anika is 14 years old and was born on Easter. She is most happy at home on the couch next to…
Anita Fuentes
Moebius Syndrome - Anita Fuentes Moebius Syndrome - Hi, I’m Anita and I’m from Brisbane, Australia. I have a mild case of Moebius Syndrome. Put simply, my main symptoms are…
Ashley & Zach
Moebius Syndrome - Zach Moebius Syndrome - My name is Ashley. When I was 21 yrs old I got pregnant with my son Zachary. My husband and I hadn't been…
Austin Halls
Hi my name is Austin Halls and I live in New Jersey. I am 14 years old. I have Moebius Syndrome. My life never has a dull moment. When I…
Ben
Story was written in 2010.
My 2nd pregnancy was uneventful, boring & long and when Ben finally put in an appearance 7 days late on 25th June 2005 everything seemed perfectly normal. A passing doctor remarked that he “looked a bit squished” and at the time I remember thinking that anyone would look a bit squished if they had just made the same journey!!
