Stories from the Global Moebius Syndrome Community.

Erin

The time had finally arrived…..labour pains kicked in on the night of sept 10th 2005.……a moment I had longed for as I was unable to conceive for the 5 years…

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Francis

When he was born, we had no idea of the journey that lay before us. We did know that he had hearing loss,but other than that, nothing seemed amiss. I…

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Gabriella

I was a 20 y/o newlywed when I found out I was pregnant. I was so scared yet the happiest women alive. Everything was going perfectly fine untill my 20…

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Gareth

Moebius Syndrome: Gareth Roberts Moebius Syndrome: ‘The only problems I have are because of how other people perceive me.’ Mar 21 2008 by Rebecca Edwards, Chester Chronicle && ‘The only…

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Gavin

‘The only problems I have are because of how other people perceive me.’ Mar 21 2008 by Rebecca Edwards, Chester Chronicle && ‘The only problems I have are because of…

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Georgia

The worst thing is to be different and have to deal with kids. “It is not their fault, they are just kids”, someone would say but the point is that I was kid too and those kids were hurting my feelings….

I was born 27 years ago in a small village (1000 residents) in Cyprus. Cyprus is a small island in the Mediterranean Sea for those they haven’t heard about it before. I learn that what I have is a Syndrome with a name and that I am not the only one in the world two years ago!

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Hannah

Hannah was born and diagnosed with Moebius syndrome. She had to undergo numerous treatments for other medical problems; she had to have a tracheotomy and a feeding tube. After spending…

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Hannah Lockwood

December 22 is a very special day for Hannah Zhou Lockwood as it marks the day when she became a U.S. citizen. On December 22nd 2011, Hannah left China and…

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