Stories from the Global Moebius Syndrome Community.

Gavin

‘The only problems I have are because of how other people perceive me.’ Mar 21 2008 by Rebecca Edwards, Chester Chronicle && ‘The only problems I have are because of…

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Georgia

The worst thing is to be different and have to deal with kids. “It is not their fault, they are just kids”, someone would say but the point is that I was kid too and those kids were hurting my feelings….

I was born 27 years ago in a small village (1000 residents) in Cyprus. Cyprus is a small island in the Mediterranean Sea for those they haven’t heard about it before. I learn that what I have is a Syndrome with a name and that I am not the only one in the world two years ago!

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Hannah

Hannah was born and diagnosed with Moebius syndrome. She had to undergo numerous treatments for other medical problems; she had to have a tracheotomy and a feeding tube. After spending…

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Hannah Lockwood

December 22 is a very special day for Hannah Zhou Lockwood as it marks the day when she became a U.S. citizen. On December 22nd 2011, Hannah left China and…

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Harrison

Harrison Paul Lowry was born on the 22nd of April 2010; it was an incredibly exciting time, as we finally got to meet our new little man.  He was beautiful!!! …

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Ike

Be Kind - Be Gentle Come to me, all you who labour and are overburdened, and I will give you rest. Shoulder my yoke and learn from me, for I…

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Issac

Choosing a name for our second child was hard but we finally settled on the name Isaac, which we especially liked because it means "he laughs" in Hebrew, and every…

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Jack

This story was pubished by Take 5 magazine in Australia. As told by Astha Gupta.Linda Lawrance Jack's mum gave us permission to use the story.To distract myself from my next…

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