Stories from the Global Moebius Syndrome Community.

Jacob

Jacob was born on December 6, 2011 weighing 7 lbs 15 oz. It was a normal pregnancy and a normal birth. He had troubles breastfeeding. The doctor and lactation consultant…

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Jade

Jade was a blessing that came in to my life on April 24, 1999. When he was born it was apparent that he had club feet, and Polande Syndrome. His…

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Jake Silvey

While at a routine ultrasound exam the technician noticed Shannon had low fluid, not seeming to concerned she said it was best if we went to a specialist, just to…

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James

Our son James is 6 years old and the youngest of our 3 children. he weighed 5 pounds and 10 ounces and he was very tiny and had to wear…

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Jasper

My name is Jasper and I'm twelve years old. This story was written when I was seven. I live with my mum and two little brothers in Western Australia. I…

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Jayden

It was October of 2006 that I found out I was pregnant with my sixth child. I always knew I wanted to be a Mommy but didn't know I'd have…

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Jennifer

Hello, Everyone! For those of you whom I have not yet had the pleasure to meet over the various forms of social media, my name is Jennifer Allaby, commonly called…

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Jessica B

Hello, and nice to meet you! My name is Jessica, but most people know me as Jess. I’m a small town Canadian girl with big dreams and an even bigger…

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Jessica Edwards

essica's story so far! At 6 weeks old she had a prolonged seizure and the medication flat lined her three times so she had to be put on life support…

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