Stories from the Global Moebius Syndrome Community.


The worst thing is to be different and have to deal with kids. “It is not their fault, they are just kids”, someone would say but the point is that I was kid too and those kids were hurting my feelings….

I was born 27 years ago in a small village (1000 residents) in Cyprus. Cyprus is a small island in the Mediterranean Sea for those they haven’t heard about it before. I learn that what I have is a Syndrome with a name and that I am not the only one in the world two years ago!


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Hannah was born and diagnosed with Moebius syndrome. She had to undergo numerous treatments for other medical problems; she had to have a tracheotomy and a feeding tube. After spending…

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Be Kind - Be Gentle Come to me, all you who labour and are overburdened, and I will give you rest. Shoulder my yoke and learn from me, for I…

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Choosing a name for our second child was hard but we finally settled on the name Isaac, which we especially liked because it means "he laughs" in Hebrew, and every…

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Ivy Ferraton

"Meet Ivy. She is a firecracker 5 year old who recently started kindergarten. She loves peppa pig and has quite the busy social life with her friends. Ivy has come…

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Ivy Stewart

Moebius Syndrome: Ivy Stewart Ivy Stewart is from New Brunswick, Canada. She was born with bilateral clubfoot and had 19 weeks in castings followed by her braces. She was Tube…

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This story was pubished by Take 5 magazine in Australia. As told by Astha Gupta.Linda Lawrance Jack's mum gave us permission to use the story.To distract myself from my next…

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Jacob was born on December 6, 2011 weighing 7 lbs 15 oz. It was a normal pregnancy and a normal birth. He had troubles breastfeeding. The doctor and lactation consultant…

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