Harrison – Moebius Syndrome
Harrison Moebius Syndrome: Harrison Paul Lowry was born on the 22nd of April 2010; it was an incredibly exciting time, as we finally got to meet our new little man. …
Stories from the Global Moebius Syndrome Community.
Ike
Be Kind - Be Gentle Come to me, all you who labour and are overburdened, and I will give you rest. Shoulder my yoke and learn from me, for I…
Issac
Choosing a name for our second child was hard but we finally settled on the name Isaac, which we especially liked because it means "he laughs" in Hebrew, and every…
Ivy Stewart
Moebius Syndrome: Ivy Stewart Moebius Syndrome: Ivy Stewart, she is 2 years old and from New Brunswick, Canada. She was born with bilateral clubfoot and had 19 weeks in castings…
Jack
This story was pubished by Take 5 magazine in Australia. As told by Astha Gupta.Linda Lawrance Jack's mum gave us permission to use the story.To distract myself from my next…
Jacob
Jacob was born on December 6, 2011 weighing 7 lbs 15 oz. It was a normal pregnancy and a normal birth. He had troubles breastfeeding. The doctor and lactation consultant…
Jade
Jade was a blessing that came in to my life on April 24, 1999. When he was born it was apparent that he had club feet, and Polande Syndrome. His…
Jake Silvey
While at a routine ultrasound exam the technician noticed Shannon had low fluid, not seeming to concerned she said it was best if we went to a specialist, just to…
James
Our son James is 6 years old and the youngest of our 3 children. he weighed 5 pounds and 10 ounces and he was very tiny and had to wear…
Jasper
My name is Jasper and I'm twelve years old. This story was written when I was seven. I live with my mum and two little brothers in Western Australia. I…