Stories from the Global Moebius Syndrome Community.

Ike

Be Kind - Be Gentle Come to me, all you who labour and are overburdened, and I will give you rest. Shoulder my yoke and learn from me, for I…

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Issac

Choosing a name for our second child was hard but we finally settled on the name Isaac, which we especially liked because it means "he laughs" in Hebrew, and every…

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Ivy Stewart

Moebius Syndrome: Ivy Stewart Moebius Syndrome: Ivy Stewart,  she is 2 years old and from New Brunswick, Canada. She was born with bilateral clubfoot and had 19 weeks in castings…

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Jack

This story was pubished by Take 5 magazine in Australia. As told by Astha Gupta.Linda Lawrance Jack's mum gave us permission to use the story.To distract myself from my next…

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Jacob

Jacob was born on December 6, 2011 weighing 7 lbs 15 oz. It was a normal pregnancy and a normal birth. He had troubles breastfeeding. The doctor and lactation consultant…

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Jade

Jade was a blessing that came in to my life on April 24, 1999. When he was born it was apparent that he had club feet, and Polande Syndrome. His…

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Jake Silvey

While at a routine ultrasound exam the technician noticed Shannon had low fluid, not seeming to concerned she said it was best if we went to a specialist, just to…

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James

Our son James is 6 years old and the youngest of our 3 children. he weighed 5 pounds and 10 ounces and he was very tiny and had to wear…

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Jasper

My name is Jasper and I'm twelve years old. This story was written when I was seven. I live with my mum and two little brothers in Western Australia. I…

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