Moebius Stories

Letter to the Teacher by Sandy Goodwick

Moebius Sydrome

Letter to the teacher by Sandy Goodwick

Dear Teacher:

About Moebius Syndrome: I’m giving you this because I want you to understand more about me. You’ll see I am just like everybody else in your class in lots of ways, but in some ways, I’m not the same. I need you to know how I am “different” from the other kids in our class so you can help make school a safe place for me.

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Letters of Support

In 2012, World Rare Disease Day falls on a truly RARE day, February 29. The Global Genes Project will be working with local businesses schools, sports teams, places of worship,…

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MFOS Testimonials

"The MFOMS website is a great place to get started, not only in learning about Moebius, but also in learning more about the people who have it and actively becoming…

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MSAD Testimonials

Moebius Syndrome Awareness Day (MSAD) is important to me for many reasons. The first, and foremost, reason is my beautiful little niece, Dakotah. She was born in October, 2008. Like…

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MSAD Testimonials 2

24 January is not only the birth date of Paul Jullius Mobius, but it also gives rise to the annual celebration of an Awareness Day for children / adults suffering…

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The Magic Mirror by Kari Storm

Fae was a very beautiful little girl, but she didn’t always see how beautiful she was. She looked different from other little girls. Her right hand looked like a pappy’s paw.

When she walked down the hallway at school the other kids would stare at Fae. Some of the kids would point and laugh. George, the little boy who sat next to her class, called her mean names.

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Why I Can’t Smile

Know how sometimes you get the feeling that you can’t do something your friends or classmates can do? I feel that way every day because I can’t smile. Let me explain.

I was born with Moebius Syndrome which was caused by a loss of blood when I was a developing baby. That loss of blood caused the nerves for my face to form the wrong way, and because of it, I cannot smile or move my lower lip very well. When you’re a teenager, or a grown up, you can’t get Moebius Syndrome, you have to be born with it. When you are born with Moebius Syndrome you could have one or more of the following features: clubbed feet, missing fingers and/or toes, crossed eyes, and you cannot smile.

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