Moebius Stories

Moebius Syndrome – Alyssa

Moebius Syndrome – Well to start things off, I would like to introduce myself and my amazing family. My name is Shannon and I’m a single mother of 4 Beautiful children. I have a 14 yr old son named Phillip, and 3 girls Kaleigh 10, Nichole, 8 and Alyssa, 6. They all are wonderful kids and always strive for the best. Alyssa is the exceptional one by far out of all my children that has overcome so many obstacles so far in her 6 years of life. She never quits – she just keeps on pushing herself to do her best and has such an outgoing personality. Don’t get me wrong she has said many times I can’t do it or it’s too hard but I’m always there behind her telling her she can do it.


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Moebius Syndrome - Amelea Moebius Syndrome - Amelea is 7, she was diagnosed with Moebius at 14 months old...she was born with crossed eyes, very minimal facial movement, and couldn't…

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I was born on the 5th of december 1984, i was in hospital for a couple of months and i was dignoised with having moebius syndrome, i also had to…

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Amy Schuster

Moebius Syndrome: Amy Schuster My name is Amy Schuster. I was born on January 5th, 1993 in Hilton Head, South Carolina. I moved to Colorado when I was 2 and…

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Andrea Smith

Moebius Syndrome: Andrea Smith Moebius Syndrome - I am Andrea Smith and I am excited to be in the role of Executive Director for Many Faces of Moebius Syndrome. I…

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Moebius Syndrome - Anika Updated 12/21/2015 Moebius Syndrome - Anika is 14 years old and was born on Easter. She is most happy at home on the couch next to…

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Anita Fuentes

Moebius Syndrome - Anita Fuentes Moebius Syndrome - Hi, I’m Anita and I’m from Brisbane, Australia. I have a mild case of Moebius Syndrome. Put simply, my main symptoms are…

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Ashley & Zach

Moebius Syndrome - Zach Moebius Syndrome - My name is Ashley. When I was 21 yrs old I got pregnant with my son Zachary. My husband and I hadn't been…

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Austin Halls

Hi my name is Austin Halls and I live in New Jersey. I am 14 years old. I have Moebius Syndrome. My life never has a dull moment. When I…

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My 2nd pregnancy was uneventful, boring & long and when Ben finally put in an appearance 7 days late on 25th June 2005 everything seemed perfectly normal. A passing doctor remarked that he “looked a bit squished” and at the time I remember thinking that anyone would look a bit squished if they had just made the same journey!!


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