December 28, 2019 / Alli Johnson Moebius Syndrome Holiday Hero

My name is Allison Johnson and this is my journey so far on this earth. The day I was born the doctors diagnosed me with Moebius Syndrome. Moebius has affected my life in positive and challenging ways. I can’t speak as clearly as an average person and this has been something I struggle with a lot, but like with everything I just persevere to get my message across. I also do not eat orally, I am fed through a g-tube and although it’s not always the most convenient thing, I just have to for my health. Moebius has set up many barriers for me for example because of my speech I have struggled socially because I don’t want to explain, why I was different for fear they wouldn’t understand. Click here to read the rest of Alli’s story.

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