December 4, 2019 / Addison Garvey Moebius Syndrome Holiday Hero

This is Addison Garvey. She was born on December 4, 2014. She is almost 5 years old. When Addie was born she was whisked away to the NICU. Addison spent her beginning months of life hospitalized. Addie underwent a tracheostomy to stabilize her ability to breathe and G-tube surgery to provide proper nutrition. Additionally, she completed serial casting for her bilateral clubfoot, followed by a tenectomy procedure on each foot. Addison finally arrived home in time for her 3 month birthday. After we were home, we visited Mounti Sinai and met with Dr. Jabs who officially diagnosed Addie with Moebius Syndrome. Click here to read the rest of Addison’s story.