When he was born, we had no idea of the journey that lay before us. We did know that he had hearing loss,but other than that, nothing seemed amiss. I noticed that he was falling behind in milestones, never slept for more than an hour or two at a time, and that except for a couple of times, he didnt seem to be able to smile or frown like most people.He also has issues with chewing/eating and cannot talk.
It took going to several different doctors and geneticists for a year and a half before he was diagnosed with a variant of moebius syndrome, and it was a big relief to get some answers.
Since that time, we have met some amazing people, and have had many oppurtunities to help other parents new to the special needs world. We wouldnt change our Frankie one single bit!