January 16, 2020 / Deana Blake Moebius Syndrome Holiday Hero

I was born on September 22, 1970. After birth, it was discovered I couldn’t suck. A visiting doctor from New York, Dr. David Chadwick visited San Diego’s children’s hospital then. He knew after examining me what it was, I had: Moebius Syndrome. A congenital disease of the facial muscles due to paralysis (unable to suck or smile).

I was put on a feeding tube until my first birthday. I was able to eat solid food from then on.

I have had nothing but health challenges since day one. Yes, I have overcome them, & still now at 49 years old, are still going through health challenges. But through faith in God & in Jesus Christ, I can overcome the challenges again.

One of these challenges is trouble swallowing. It’s part of the Moebius Syndrome.

I didn’t know much about what I was born with until I began asking questions & my dad gave me some answers before he passed. I’m forever grateful for him giving me details.

I have written my memoir talking about living with Moebius Syndrome. I have yet to get it edited & hopefully published.

After my dad’s passing, I have tried & failed to search out the doctor who first diagnosed me with Moebius Syndrome. ‘Til this day, I still have had no luck in locating him. If I did find him, I had wanted to thank him for saving my life. Moebius Syndrome was extremely rare back then with very little resources to speak of. I’m so glad in today’s technology there ARE resources available on the web. For more information go through: www.manyfacesofmoebiussyndrome.org to learn more all about it. January 24th is national Moebius Syndrome Awareness Day, please wear purple in support of this. Thank you.

Moebius Syndrome Awareness Day
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