Thank you for your interest in serving as a member of the Board of Directors for the Many Faces of Moebius Syndrome. Serving on the board is a rewarding experience and an opportunity for personal and professional growth. Completing this form will help you understand the skills and time / resource commitments of this leadership position. You may find it helpful to read through the entire application and Board Member Responsibilities before you begin filling it out. Please return the completed application to Many Faces of Moebius Syndrome PO Box 1203, Parker, Colorado 80134 or by email to This application will be kept confidential and on file. Applications are used by the Many Faces of Moebius Syndrome to identify and evaluate potential board candidates. All new directors are elected by a majority vote of current board members. All applications must be received by May 30, 2021.


  1. Serves a minimum of one (1)three-year term on the Board. Eligible to serve two (2)three-year termsif re-elected.
  2.  Attend a minimum of four (4) Many Faces of Moebius Syndrome board meetings each year.
  3.  Makes a serious commitment to participate actively in all Many Faces of Moebius Syndrome activities. The Many Faces of Moebius Syndrome is a working board where each director takes on a project.
  4. Stays informed about committee matters, is prepared for meetings, and reviews and comments on minutes and reports.
  5. Builds a collegial working relationship with other committee members that contributes to
  6. Participates in the committee’s annual evaluation and planning efforts.
  7. Participates in Many Faces of Moebius Syndrome fundraising and member recruitment.
  8. Agrees to sign a confidentiality agreement.
  9. Understand that other responsibilities may be added if candidate is elected to become a board member of the Many Faces of Moebius Syndrome.


To enhance and support the Global Moebius Syndrome Community.


We lead with integrity, commitment, and compassion.


To educate and create awareness for Moebius Syndrome in order to enable those affected to live better lives.

Please contact Andrea Smith for further assistance.