Moebius Syndrome Awareness Day
When: January 24
What is Moebius Syndrome Awareness Day?
MSAD is an annual event created by the Many Faces of Moebius Syndrome (MFOMS) and celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888.
History of MSAD:
The concept of a worldwide MSAD in which people are encouraged to wear purple and spread awareness about the syndrome originated from the MFOMS, an organization run by Tim Smith from Virginia, USA, Gavin Fouche from Cape Town, South Africa. Smith and Fouche have Moebius syndrome. Most of their organization and preparation for the event is done through social media platforms such as Skype, Twitter and Facebook. Smith and Fouche have never physically met, but both share the same passion for spreading education and awareness about Moebius syndrome which will enable those affected by it to lead better lives, they believe.Read More
Awareness Day 2020 Events.
1. Colorado: Saturday January 25, 2020. Contact Kacie Brailsford at kacie@massol.yahoo.com.
2. Virginia: Saturday January 18,2020.
3. Texas: January 25, 2020 3rd Annual Moebius Fun Run / Walk.
If you would like to host a MSAD Event or need help planning one contact Tim at tim@mfoms.org or Andrea at andrea@mfoms.org
Moebius Syndrome Awareness Day Press Release:
Many people choose to contact their local news papers, radio and television stations to have their MSAD stories published. To learn how to get your story in the media click here. To view and download the official 2020 MSAD press release click here.
MSAD Flyers:
Looking for some MSAD Flyers to hand out at school, work, or school? Check out what we have available. Click here to view, download, and print.
MSAD Photos:
Looking for some photos to share on social media? Click here to view and download our selection.
MSAD Iron On Transfers and Stickers:
It may be too late to orders MSAD shirts and stickers, but it’s not too late to create your own using our photos or others. Click here to learn how to create iron on transfers. Click here to learn how to make your own MSAD stickers.
Moebius Syndrome Awareness Day Testimonials:
“I was surprised by how much Jasper got out of MSAD. As a confident, bright and outgoing kid I have always felt that he just took the condition in his stride. Whilst I believe in spreading awareness, I never realized the impact having a MSAD would have on Jasper personally. The pride in his face from being the Moebius Syndrome Holiday Hero on January 24th was incredible- it dawned on me then that MSAD was important for him because it gave him the opportunity to celebrate who he is BECAUSE of Moebius syndrome not despite it. I have always tried to ensure that Jasper never feels as though he is deficient or that he needs ‘fixing’, MSAD helped to consolidate this.” – Lauren Broadhurst, Australia Click here to read more MSAD Testimonials.
Moebius Syndrome Awareness Day letters of support:
Over the years we received a few letters of support from other Rare Disease Organizations. Click here to read them.
Moebius Syndrome Awareness Day Galleries
To learn more about Moebius Syndrome and MSAD please visit the: