Moebius Syndrome – Ophelia was born full term, but ultimately spent a month in the NICU. She was immediately diagnosed with CVI (cortical visual impairment), bilateral club feet, and had a feeding tube put in when she was 10 days old. When she was 2 months old she came down with very serious pneumonia and was admitted for another month in the PICU where she got her tracheostomy. After that procedure, Ophelia began to truly thrive and progress. She turns 3 in March…and we cannot believe she is growing so fast!
Ophelia attends an Early Intervention class at Little Lighthouse in Tulsa, OK (a Christian non-profit school for special needs children age 0-6), and has been on the waitlist for full-time attendance since she was about a month old. Due to these classes, and endless therapies over the past few years, Ophelia is coming into her personality and is a feisty redhead. We wouldn’t have her any other way! She adores her big brother, Egan, music, and loves to dance. We often refer to Ophelia as “O” and she is our #tinyfighter!